BIVDA has commissioned a report with Charles Rivers Associates to look at the role of partnerships and policy solutions in addressing challenges in the genomics diagnostics landscape. The objective was to develop a novel, evidence-based industry report supporting the wider implementation of genomic testing to address the following questions; What value does genomic testing bring to patients, physicians, health systems,…
Ben KempMarch 3, 2023
BIVDA held the first working party of the year at the BIVDA offices to finalise the White Paper on a new narrative on value frameworks and partnership models which was commissioned on behalf of members. The objectives of the meeting were to collectively review the evidence collected during company interviews and literature review, discuss evidence surrounding the role of partnerships…
Ben KempFebruary 10, 2023
Members of the Genomics Working Party may be interested to read this delivery plan authored by the Welsh Government. The report can be read here.
Natalie CreaneyDecember 2, 2022
BEIS has published a case study on how genomic data was shared during the covid-19 pandemic. This report discusses the highlights and challenges that were faced for genomic data sharing through this time, including how these could be addressed going forward. Some of the issues discussed include the difficulty in gaining the data in the first place and the associated…
Ben KempNovember 18, 2022
Charles River Associates (CRA) has been commissioned by the British In Vitro Diagnostics Association (BIVDA) to develop a new narrative on the UK genomics landscape. The focus is firstly to develop a value framework articulating the benefits of advanced in vitro diagnostics (for patients, healthcare systems, payers, and wider society) and current access challenges in the UK, and secondly to…
Natalie CreaneyNovember 10, 2022
Prior to Monday 10th Virtual WP meeting, please read and be prepared to feed back any comments during the meeting, or if you can’t attend the meeting, please send on email to helen@bivda.org.uk. The paper can be accessed here.
Ben KempOctober 7, 2022
The NHS Genomics Programme is developing a strategy which will set out the priorities for the NHS GMS over the next 3 to 5 years and they’d like members’ input on what these priorities should be. The outcomes of this survey will inform the development of the NHS genomics strategy and the final strategy will take into consideration funding and…
Ben KempSeptember 2, 2022
On 25 May, Ashleigh attended the Global Genomics Conference hosted by Public Policy Projects. This event brings together a variety of stakeholders within the genomics space to deliver discussions around they key topics facing the space. The day was opened with a panel discussion on diversity within genomics, both in the workspace of and in the genomics samples and studies…
Natalie CreaneyMay 27, 2022
Public Policy Projects has organised a ‘Global Genomics Conference’ 2022 event, sponsored by Genomics England (a member of BIVDA). The event will provide a platform for the exploration and discussion of some of the key policy and ethical considerations of participation in genomics and builds upon the more specific work that PPP has conducted and is conducting in the UK…
Ben KempApril 8, 2022