BIVDA attended the APPG for Life Sciences third event of the year on Tuesday centred around the ‘Data Saves Lives’ Strategy first published in June. This was an opportunity to engage parliamentarians and facilitate sector discussions on the use of digital technology and health data for the benefit of patients, industry and the NHS. The roundtable event was hosted by the APPG Chair, Mr Daniel Zeichner MP.
On the agenda was discussions on the NHS app, access to clinical trial data, the UK biobank, interoperability within NHS trusts, approaches to improving system, and learning from international comparisons regarding health data legislation and effective action. From the BIVDA perspective, data within diagnostic provision was examined, including how results are communicated to patients and the benefits of a ‘joined up’ system for delivering efficient patient care and boosting public trust in providing their data for healthcare service improvements.
Two BIVDA member companies attended the roundtable discussion, Curenetics and ThermoFisher. We thank the delegates for their insightful engagement and input with the discussions and hope that further work can take place on the implementation of the Strategy going forward. Anthony Browne MP also contributed to the dialogue and asked questions to the expert panel on data integration issues.
The next APPG event takes place in September and will address the Life Sciences Vision, its implementation progress and future steps. BIVDA will be supporting the event through its co-secretariat role alongside BIA and ABPI associations.
Please contact Michael for any further information on the APPG activities, or to provide input to any of the events or materials the group produces.