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New £10.4M rare kidney disease research centre to pioneer new tests treatments

By April 23, 2024No Comments

Thousands of people living with rare kidney disease will get access to improved diagnostics, treatments and potentially cures, thanks to the creation of a new research centre co-funded by Kidney Research UK and medical charity LifeArc. It will be led by experts from Alder Hey Children’s NHS Foundation Trust and the University of Liverpool.

The LifeArc-Kidney Research UK Centre for Rare Kidney Diseases is being launched to provide urgent focus and resource. It will unite researchers, patients and healthcare professionals and build on strong established resources, including the national registry of rare kidney diseases (RaDaR), the national renal sample biobank (NURTuRE) and care guidelines.

Rare kidney diseases require urgent attention as a major report from Kidney Research UK has shown that kidney failure could overwhelm the health care system within ten years. Rare kidney diseases collectively account for at least 10% of adults with kidney failure and almost all children with kidney failure.

Ben Kemp